"'Our family’s faith is in Jesus Christ and is not dependent on outcomes.' ...We do all that we can for the healing of a loved one, and then we trust in the Lord for the outcome."
- Elder Dallin H. Oaks

Monday, February 28, 2011

The Healer

I keep getting asked how I feel.
Really, I feel like crap. (Hmm... I use that word often and hate it when my kids use it, so I guess I better rethink that particular part of my vocabulary. But for now, substandard just doesn't seem to deliver.) 

In all honesty, I do feel a little better after three days of steroid infusions than I have felt in the last six weeks. I still have two more infusions, so hopefully things will just get better. It all started with the annoying vertigo that just wouldn't and hasn't gone away.

Several symptoms have been added to the vertigo. It was getting to the point that I felt like I was declining everyday. I still feel like a crazy person, but the steroids are helping. The numbness on the left side of my lower face is gone. And while my vision is still often blurry and peripherally double, I can at least see peripherally out of my left eye now. No more big black block. My mouth still feels like I have been to the dentist on the right side, my cheek is still a little zingy and I am not remembering things as well, but at least I am walking a little more normal. I am not stumbling as much. At least not like the day I fell down the stairs with Eliza or when I went in for another MRI and the technician asked if I had taken something before I went. Oh brother! Did the thought not occur to him that I was coming in for another MRI on my brain only two weeks after the first one? In his defense, I did run into the wall!!

After four MRI's, three blood draws (for various tests), two appointments with specialists, a lumbar puncture, and the input of five of the Huntsman Cancer Institute's tumor board neurologists,  it is pretty certain that I have Multiple Sclerosis. (Here is a little information video for a quick MS 101) Fortunately, early treatment is the most successful. The treatment options are mind boggling in and of themselves, and there are so many alternative treatments to consider as well. There is help. I will be fine. I am anxious to feel a little more like myself again and not so pathetic and crazy. (Because that is really how I feel, aside from the symptoms being super annoying, I have been frustrated that I couldn't just make myself get up and live normal everyday life. I would think long and hard about whether is was worth it to get up and shower and fix my hair and then feel worse later in the day. Lame, I know. I wish I could explain it better, but really the best way I can explain it is that I have felt like, note the afore mentioned, crap.)

A huge part of my struggle has been that it feels like my kids deserve better. They deserve to have one healthy parent. One who isn't "neurologically diseased." I think the worst was after the day that the double vision in my eyes became more permanent. I had spent the majority of the day lying on the couch. Josh was putting the kids to bed and explaining that I was sick and didn't feel well. Kimball started to cry. He was really upset and worried that his dad was going to die and his mom was going to die and that there would be four kids living alone in our house and that he wasn't big enough to take care of Eliza. Not only is it sad to hear his concerns vocalized, but to know that such a heavy burden was weighing on his little seven-year-old shoulders. He shouldn't have to carry that. None of my children should.

Still, even in saying that, I am reminded of the distant feeling I had in the temple after learning about Josh's tumor. I was told that it would be hard, that it would hurt, but that ultimately... everything is in His hands and that it would be okay. Christ is the Healer. He is the one who can heal us from physical infirmity (if it is according to the Lord's will) and He can heal our aching hearts when life is hard. That is His purpose. To be our Savior.
I am going to post another song. "The Healer," was written by one of my close friend's twin sister. The CD is called, Praying for a Better Day by, Tari Van Tassell. I looked it up and you can buy a download here.
I know that I keep talking about songs and putting them up on my blog, but really... music is one of the best ways to feel the Spirit, and it has been healing to me in so many different ways. Please take the time to listen to this song. You will not be sorry. It strengthens my faith and testimony of Jesus Christ every time I hear it. In recent weeks, it has helped me to see that while a complete physical healing may not be possible, a spiritual and emotional healing is really what I need. (I spent the time to make the video myself, googly eyes and all, so... go easy on me! It was the only way I could figure out how to get the actual music on this post.) 

13 comments:

Kelli said...

We don't really know each other aside from the get fit challenge.... But I just learned last week all tha your family is going through and my heart aches for you all. I have no words exceptyou will all be in my prayers. Hang In there. Hugs

~Christine~ said...

Sorry to hear about your diagnosis on top of all the other happenings in your life right now....but one thing I know for sure is that YOU and your FAMILY will get through this too. You are one of the most spiritual people I know and your trust in the Lord is absolute!

Candy said...

Crap is right. And say that word all you want, you have my permission. It's totally allowable.

What can I say? Hang on to your faith and the knowledge that Christ is The Healer. I will always have hope for you. If you are having a down-in-the-dumps-day, just know that I (along with MANY others) are praying for you and your family.
I'm glad that steroid shots are seeming to help, and I hope the last two kick those symptoms in the face.
I had vertigo for two days and was so miserable, so I can't imagine it going on for over 6 weeks.
Take it easy. WHO CARES if you don't shower and do your hair?! really. Casualty of war, my friend.

Iby libove yibou kribistiben.

Kandice said...

My mom was diagnosed with MS a couple weeks ago. I have watched her suffer with symptoms similar to yours over the past year. It has been so hard to see her suffer. I feel absolutely sad that you are having to face this amongst your many other trials.
I think of and pray for you often. I appreciate you always sharing uplifting things on your blog!-I loved that song/video

ellencheshire said...

Kristen,
I know you are so strong! You know you must be as well, since the Lord will not give us more than we can handle. You are a constant reminder to me to have faith. Your little family has been thrown so many trials and I am in constant awe at the way you continue to push forward. When I think about your famiy, I can't help but think what valiant spirits you all must have. Keep having faith in knowing that our Heavenly Father loves you all so much. You are constantly in our thoughts and in our prayers. Hang in there!

Mike, Sha, Kenna, Kate, & Garrett said...

You always amaze me with your wisdom. I hope that when big trails come my way I can handle them with half your grace. I love you and pray for you.

Shafferprincess said...

Kristen - wow! That's about all I can say. Wow.

How do you stay so positive? I know you have your bad days, but it seems like you are always quick to remember and remind those of us that read your blog that we need to have faith, and stay positive. I think I'd be freaking out if I had just been diagnosed with MS.

Reading Kimball's words just breaks my heart. I can imagine how frustrating it is for you to not be healthy and to feel that they deserve better.

But, they were sent to you for a reason. Your boys already have such a strong testimony of the gospel and have such sweet hearts. While there will be days that you feel awful and wish that things could be different and that they deserve better, just remember that they deserve YOU. Whether you're sick or not, they're yours.

I love you, Kristen, and my thoughts and prayers are with you always. I know I'm far away, but please let me know if there is anything I can do to help.

Renee

(P.S. The video says it's private so I can't watch it. The music video at the end, not the MS 101.)

Christine said...

I love your sense of humor. At times it feels that is the only thing we have going for us. You and your family are in our prayers. Keep a smile on your face. Be strong.

Kristi said...

Kristen, I am SO very sorry! Your trials and attitude humble me. I pray for you everyday, please know that you are loved and thought of.
And if there is anything, ever, that I can do for you, please let me know.

Chandra said...

I have a knew theory on trials. It's not very mainstream but for now it works for me.
I'm sorry Kimball is afraid. It is always hard to see people we love suffering.
I'd love to see the video and watch hear the song but it says the video is private. Invite please?
More prayers are coming your way. Love ya.

Hope said...

I tried to watch the video but it says it is "private"? Am I doing something wrong?

I'm glad you are getting some answers - I hate when you know something's not right and no one can tell you anything concerete - but I hate that you have to endure this diagnosis. You and Josh and the kids are always in my thoughts and in the back of my mind. I know I don't have to tell myself this but stay strong. You have already demonstrated incredible faith and perseverance (sp?). None of this seems to make any sense, but I suppose that's where hope and faith and the blessings of the gospel come into play, knowing someday they will and we'll understand. Please call on us if we can help in ANY way, big or small. We will never say no.

Mark and Colette said...

Kristen Thanks for sharing your feelings about what is happening. You always amaze me with your words. You are truly a daughter of God and he loves you and trusts you with this trial. I know you can do it. We are here for you and will do what ever it takes to lighten the load. Please let me know what I can do for you! I love you sister!

Nathan and Shanna said...

That song and video is amazing. You never seem to amaze me with your spiritual strength. It has strengthened me! Thanks so much for sharing!